Reminds Me Of Season 5 TMA

alex and jonny give me an easy episode to draw challenge (impossible)

I got blood inside my phone charging port and now it only works 50% of the time

I'm curious. Reblog this if you know how to cook

I don’t even care if it’s macaroni, ramen or those little bowls you stick in the microwave. Please, I need reassurance that most of the population on tumblr WOULDN’T STARVE TO DEATH if their parents couldn’t fix them food or they couldn’t go out to eat. 

Dissociative Seizures

Educational post. Trigger warnings: Medical equipment and description of seizure. 

Written by Tom and Blade.

Why will we cover this? 

Although dissociative seizures are not exclusive for those with dissociative disorders. Some people with dissociative disorders will have seizures.

A dissociative seizure is named differently in different parts of the world. 

I will be referring to them as dissociative seizures or Non-epileptic attack disorder (NEAD). 

However, may also be seen as a one of the many symptoms/types of Functional neurological disorders (FND) its matching term in the ICD-11 is Dissociative neurological symptom disorder. And this post will focus specifically on only the non epileptic seizures. 

It is also known as Psychogenic non-epileptic seizures (PNES), Non-epileptic seizures, and Psychogenic seizures.

If you have known these as "pseudo seizures", it is asked that this is no longer a term that should be used because the name suggests that the seizures are not real or faked by the individual having them or cannot have an ever lasting impact.

What causes a dissociative seizure?

Unlike epileptic seizures they are not caused by abnormal electrical activity in the brain.

A person can get triggered by sensations, thoughts, emotions and difficult situations. Memories of painful events can suddenly come into thoughts or awareness or a build up of stress can happen in a moment. The dissociative seizure can happen as a way to cut off stress or bad memories so that they are not relieved. This can cause a person to start to dissociate. This is when they will feel disconnected from the world around them or make it seem like the world is not real. The brain will "shut down" to protect itself from overwhelming stress. The seizure then happens because the emotional reaction of the person becomes physical.  It is known that extreme emotional distress can cause illnesses and disorders such as non epileptic seizures. 

Some people who have dissociative seizures have them caused by traumatic events. For some they may happen after the event or for others they could start years later. They may start to happen suddenly with no apparent reason at the moment. However, in some people they can be caused by the build up of stress overtime.

When seizures start they can be triggered by stressful or frightening events, even the worry of having a seizure can trigger one. They could also occur spontaneously in non stressful events. Patients may not be able to understand why seizures happen as for some it is hard to recognise the level of stress they are feeling.

What do dissociative seizures look like?

Dissociative seizures can look different from person to person.

You could have episodes of uncontrolled movements, sensations or behaviour. Some dissociative seizures may look more like epileptic seizures or may look more like fainting. Someone may have palpitations, sweat, hyperventilate and have a dry mouth. Someone may fall on the ground or have jerking and shaking movements either on one side or the whole body. A person may lose control of their bladder or bowels and may also bite their tongue. Some people may go unresponsive to people around them and may stare and go blank.

Having seizures caused by a delayed response to a traumatic event may be a part of Post Traumatic Stress Disorder (PTSD). In these seizures a person may have flashbacks, scream or cry and they may not remember the seizure afterwards.

Diagnosis of dissociative seizures.

A specialist will have many ways to tell whether the seizures are epileptic or not. The doctor may be able to tell from detailed descriptions of the seizures or a video of one happening. However, a doctor may ask someone to have an electroencephalogram (EEG) to determine whether electrical changes occur within the person's brain during a seizure. It may also be suggested for a person to have a video-telemetry. This could be done as an inpatient in a hospital or at home. A person will wear EEG equipment for a few days and is linked to a camera. This means that during a seizure the EEG and a video of it happening can be taken at the same time. 

Brain scans such as Magnetic resonance imaging (MRI) or Computed Tomography Scan (CT) scans may also be done to rule out any neurological cause for these seizures. 

Treatment for dissociative seizures.

Patients may also be asked to see a psychiatrist or psychologist. They can offer Treatment such as psychotherapy, stress-reduction (such as relaxation and biofeedback training), and personal support to help you cope with their seizures. 

Talking therapy is useful to understand if there are triggers for the seizures and ways to manage these triggers in daily life. Cognitive behavioural therapy (CBT) is often recommended.

Medication will not help treat non epileptic seizures so they will only be suggested if the patient also has epileptic seizures. Taking medication for non epileptic seizures can cause side effects and do not benefit the person.

It is recommended to keep a normal daily routine. And to make sure that their family and friends are aware and understand. This will mean they will likely be able to help the person in a seizure and prevent harm.

First aid for dissociative seizures (Outsider's perspective):

DO:

- Make sure the person is safe. This can include moving objects away from them. If the person is lying on the floor, put a cushion/something soft under their head.

- Speak Calmly and in a reassuring way to the person

- Non epileptic seizures do not cause damage to the brain no matter how long it happens BUT if you are not sure if it is a dissociative seizure and lasts more than 5 minutes an ambulance must be called. If it is epileptic then a seizure longer than 5 minutes can damage the brain. (Again important to note this is advice given by the NHS of the UK)

- Stay with the person until they have recovered

DO NOT:

- Do not restrain the person. This can cause injury and make the seizure worse.

- Do not put anything in the person's mouth 

- Do not attempt to give medication

Self help tips:

- Write down how you are feeling

- Continue to live normally and not become over cautious. This can help to speed up recovery. It is important to talk to your employer about these seizures and make clear your colleagues know what to do as well.

- Eat and Sleep well

- Build up self confidence

- Green exercise is a great way to boost your mood by being outside even if it is for a short while. Going for a walk outside.

- Fitness programmes can be found online and most can be done from your home 

- Remaining positive 

The sources we have used for this information also have more information on disability rights and benefits for those with dissociative seizures. And on driving regulations. However, these are only applicable to the UK. 

Resources we have used to create this article:

Epilepsy Society: https://epilepsysociety.org.uk/about-epilepsy/what-epilepsy/non-epileptic-seizures

Epilepsy Action: https://www.epilepsy.org.uk/info/seizures/dissociative-seizures-non-epileptic-attack-disorder-nead

Sheffield Teaching Hospital document: https://www.sth.nhs.uk/clientfiles/File/pd3922_NonEpilepticSeizures.pdf

Non-Epileptic Attacks: https://sites.google.com/sheffield.ac.uk/non-epileptic-attacks/home.

Further information:

People's experiences: 

Documentary film https://www.youtube.com/watch?v=MA1EYAg9y5k. Photosensitive Epilepsy Trigger Warning at (9:14 - 9:30 ) and at (45:25 - 46:18)

Websites for more information: 

NeuroKid: https://www.neurokid.co.uk/ - This is a website for children and young people with dissociative seizures but also has information for parents of these children. The website is also available in French at https://www.neurokid.co.uk/fr/.

Non-Epileptic Attacks: https://sites.google.com/sheffield.ac.uk/non-epileptic-attacks/home. A page written by professionals. They have more resources and go into more detail about the self help we have addressed.

FNH Hope UK: https://www.fndhope.org.uk/about-fnd-hope/fnd-hope-uk/. Has fundraising challenges across the UK. They also have online classes such as dance, painting, mindful meditation and yoga.

Charities:

FND Action: https://www.fndhope.org.uk/about-fnd-hope/fnd-hope-uk/. They can provide ID cards for those in the UK struggling with dissociative seizures. 

Brain Charity: https://www.thebraincharity.org.uk/condition/non-epileptic-attack-disorder/. Provides Emotional support and social support for those in the UK and has a helpline. 

Trigger warnings: Medical equipment and description of seizure. Educational post.

"Can you switch for me?"

“Can you switch for me?”

Switching Questions and Answers 1

Answered by Blade 

This question can have both positive and negative implications, depending on the person and the situation. I would like to discuss certain scenarios where this question may or may not be appropriate.

Scenario one: Clinical setting (Appropriate)

In a clinical setting, such as therapy, this question may be asked. However, the wording of the question is inappropriate but the intent of the question is. The therapist may be trying to assess the system's ability to reach out to others and switch in a calm setting. This can help the therapist understand the system's communication and willingness to collaborate. If the therapist is familiar with Dissociative Identity Disorder (DID), they may be asking in order to use a therapeutic approach known as the "Switching technique." It is important to practice this technique in therapy and the therapist will have a better understanding of where to start teaching this technique based on already established levels of communication.

Scenario Two: Asked to switch as proof of disorder (Inappropriate)

If someone, whether it be a friend, stranger, or therapist, asks you to switch as proof of your disorder, this is highly inappropriate. It suggests that your disorder is a show or not real. Switching for systems cannot be controlled and should not be used as a means of proving the disorder. Even if the system has experience with the switching technique, it should only be practiced in a calm setting and used in practice to protect from distress, not to entertain others. Positive triggers, while not negative, can still cause harm to systems. Switching can cause headaches, fatigue, and communication issues if someone is forced out without warning. Forcing someone out can also make them feel invalidated as an individual and could potentially harm progress in future communication or willingness to collaborate.

Scenario Three: Asking because they want to talk to a specific alter. (Mixed)

In a clinical setting, a therapist may want to work through trauma with a specific alter or has done so in the past. They may also be trying to understand the system better. In this case, the therapist may ask this question to see if the alter will come out. However, it is important to note that this can be both good and bad. If the therapist is pushing for a forced switch, it is not appropriate. In a personal situation, if the person is suggesting they do not want to talk to the current fronter and only want to talk to a specific person, it can be harmful. This can also be the case if the person is not a good friend and only wants to talk to an alter they find "interesting," such as a fictive. This suggests that our lives are for others' entertainment, which is not acceptable.

Scenario four: Asking to reduce potential harm or risk to the system (Appropriate) 

In a personal setting, if the system has been triggered and someone who

should not be out for their safety, such as a little, has fronted, it may be beneficial for someone to ask for a specific protector to front to handle the situation. In this case, being asked or told for someone to front can benefit the system. The person asking in this situation is most likely a good friend and is asking for good reasons so that there is less pressure in the system to figure out a solution if an external person is guiding the system through who should be trying to front.

Answered by Blade 

Switching Questions and Answers 1

“Can you switch for me?”

Nice to have you back king xx

Greetings, fellow explorers!

Welcome to Echoes of the Multiverse.

Here, you will embark on a journey of discovery through the intricate landscapes of the human brain and its functions. Our mission is to unravel the mysteries of Dissociative Identity Disorder (DID) and elements of Postural Orthostatic Tachycardia Syndrome (POTS), while also exploring a little of the depths of astrophysics and quantum mechanics as a way to show you all how we like to understand our conditions.  

What we aim to achieve:

Our goal is to inform others about these conditions, including their diagnosis, and treatment. And share tips for others living with these conditions and help empower our community. We will also share personal stories about our experiences with these conditions.

What kinds of posts will you make?

All posts will be labelled clearly with trigger warnings at the top and bottom of all posts and indicate their type (educational, personal etc..) It is important to note that our information on treatment and diagnosis will be based on the NHS system, as it is the most accurate and reliable source that we can research from. We will be using the ICD 11 because the ICD is the only assessment manual that officially applies in the NHS in England and is written by the World Health Organisation (WHO).

Educational posts:

These articles will cover topics such as symptoms, diagnosis, treatment options, therapy settings, and the latest research developments. These posts will be separate and we will provide links to the following pages on the same topic.

All our information for these posts will come from research papers and official medical websites. These sources will be linked on the blog itself and or mentioned where others can find it.  

We do not want endogenic systems or supporters to interact with our page because this is a scientific blog and we do not believe in endogenic DID.

Personal Stories and Experiences: 

Our personal stories will serve as a reminder that those with these conditions are not alone and provide insight into the daily struggles and overlooked aspects of living with them. We may also incorporate physics concepts into our posts, as it has been a helpful tool for us in accepting our conditions. We encourage our readers to find their own interests and use them as a means of coping and understanding. 

When it comes to POTS, we will only be sharing personal experience from confirmed elements of the condition as we are still in the process of being diagnosed so we will not share experiences as being of POTS specifically but of orthostatic intolerances and tachycardia.

Answering questions: 

These posts can be either personal stories or educational posts. These posts will aim to answer questions we have received on our blog, asked in real life or have seen asked on the internet, and we would like to give our response to them. We hope this will help in raising awareness but also advocate for greater understanding, support or inspire others to research and maybe even contribute to the field themselves too.

Tips and Strategies: 

These posts can be either personal or educational. We will aim to provide useful advice that could potentially help others struggling with these conditions cope with life better. We will also advise those seeking how to help someone close to them with this. However, it is important to note that our advice is general and it is always best to directly ask the person what would help them. Using our advice might be a good starting place in suggestions for those conversations. 

Spotlights for others:

We want this space to also be open for others to share their personal experiences. These can be written to us in asks. 

 We ask that these submissions include trigger warnings and specify which category they would fit into, and we will do our best to keep everything organised and easily accessible on our page. If it does not fit into a specific category that is okay we will do our best to organise it. This means anonymous pages are open.

Thank you for joining us on this journey. Your presence here brings a new voice and unique experience to our page, and we welcome you to be a part of our community as we strive towards understanding, acceptance and growth in our healing on the way to thriving.

We hope you enjoy your journey around the multiverse here. Whether you are here to just listen out to the echoes and learn more or are here to explore echoes of your own you are a cherished explorer here. 

I made this poster for an art market this week & thought I'd share! Maybe we'll recruit some new folks to the AD scene?

Hey everyone!! proxy_for_global on instagram helped me get this cool glider from the megacoffee promotion!!

These look so cool colour matching on these characters!!

It’s the thumb post y’all.

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Christian Grey put his thumb in my mouth. And then the other one. And then two more. "Wider,“ he said as he put in one more. "I bet you’ve never had this many thumbs in your mouth.” I hadn’t.