Why Is Accessibility So Inaccessible… Someone Explain How This Is Supposed To Make Sense

it hurts hearing other disabled people talk about medical mistreatment.

like i am partly grateful to not be alone of course, but i really wish it wasnt a common or even standard occurrence.

breaks my heart.

cries its so beautiful

omark thinks if imark just finds out about gemma he'll love her the exact same way omark does and he becomes genuinely frustrated that that's just not the case. he just doesn't understand that his innie is his own person with his own relationships and memories that he takes just as seriously and just looking at and learning about his outies wife won't suddenly ignite something in him. oirving wanted to try to be loved the same way his innie was, idylan fell for gretchen as he got to know her. imark has helly, he doesn't know gemma, he doesn't need to reach across the barrier to find romantic connection, he's got everything he needs on the severed floor. and omark's inability to understand that is why his wife has been left alone in the lumon stairwell

im seeing sooo much misdirected anger and blame in all kinds of communities and im just rahhh its so sad and frustrating because i just want to scream that theyre angry at the wrong people

chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier

IS THAT AN EXPENSIVE SOUND 😭😭😭😭

Just random stuff I find annoying

im reading emily wilde’s encyclopaedia of faeries right now and im not sure how i feel about it.

like i like it dont get me wrong. i eat anything up that has fairies of any kind.

but im a very.. emotional person, and so the format of the book being emily’s diary, and her being quite a.. professional and almost stoic? person, doesnt quite engage me as much.

maybe she taps into her emotions later in the story (i’m about a 1/3 of the way through) so idk!! thats just my thoughts so far

yes omgosh im having such a hard time finding brightly coloured wool yarnnnn

i just want natural fibre thats colourful pleaseeee

wish be knit with cool yarn rn

BFL & targee & cormo & rambouillet & —

Something that really bothers me about disability activism and representation is how people with gastrointestinal illnesses or disabilities continue to get the short end of the stick and that nobody ever talks about it because it’s “taboo”, which it absolutely shouldn’t be. We can’t be open with people IRL, even in disability spaces, about our conditions because they’ll either view us as disgusting or triggering or they’ll view us as sex objects because of their fetishes. We don’t fare much better in fiction, with GI disability rep being largely allocated to either grossout humor, the author’s barely disguised fetish, or just actual pornography about our conditions.

It sucks because I have a lot of health issues, and I can talk about my chronic pain or my stigmatized mental health conditions with no fear of being shamed, but it feels like w/ my GI issues I’m keeping a dirty secret because that’s how people - including other disabled people - treat these kinds of conditions. People like me shouldn’t be made to feel like we’re outsiders in our own spaces.

(Note 1: This post is not meant to kinkshame. I bring that topic up because unfortunately it IS some of the only rep we get, and we deserve representation that talks about our disability as a disability and not something sexually arousing)

(Note 2: Other disabilities/illnesses are treated this way too. This is just the one I have experience with.)

kinda proving my own point by posting about consistency and then getting really sick and going to hospital jfhdkd

“consistency is key” doesn’t apply to many disabled people.

going to the doctor and having them tell me that and that i need to stick to a schedule they have deemed appropriate is completely comedic.

what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.

what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.

how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.

do you not think i have tried to stick to a routine and schedule like all the healthy people around me??

all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.

im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs.