anyone who thinks health issues end with walking out of the hospital doors, massive reality check for ya. there is no clocking out of chronic illness or disability.
surgery does not cure everything, medication does not cure everything. hospital cannot cure everything.
the amount of people in my life who believe that when i go to hospital, i will be discharged cured or symptom free is astonishing to me.
most of these people have known me long enough to have seen me through multiple hospital admissions and every time they come back to this way of thinking even though its never happened.
I hate that there's no way to be disabled that people will accept.
If you show joy, or acceptance in your disability, you're not really disabled and no one will take you seriously when you do complain and well it can't be that bad and oh I'm sure you're used to it.
But if you're miserable then you're whiny and annoying and people hate that it's "all you talk about" and its always ugh you're always tired and can we please stop talking about this it's making me depressed and oh I'd kill myself if that happen to me.
If you're happy you have everything figured out and don't need help anyway but if you're miserable you're a whiny bitch that can't just suck it up. There's no winning
its really confusing when youve had a traumatic childhood, but your adult life has been really traumatic too.
because on the one hand i have so much nostalgia for my childhood and i long for it, but on the other hand it really wasnt that great.. i just had less responsibility for my health.
i feel like im constantly searching for when i felt safe, but im not even sure if there was really a time where i truely felt safe.
i think thats why i love engaging with media from my childhood so much, its what helped me escape as a kid and im still running after that feeling.
the level of censorship around this man is ridiculous, what happened to free speech? It’s just his name.
on day 5 of a migraine get me out of here
Bloom redesign đź’™
i find it interesting the overlap of c-ptsd symptoms with autistic traits.
i get asked all the time if im autistic. i even started questioning it myself just from how often this happened to me.
but while yes i have a lot of symptoms that are a part of many autistic peoples experiences, i wasnt always this way. i developed these symptoms throughout my childhood as i went through more and more trauma.
i remember when i wasnt sensitive to noise, light, etc. i remember when my social abilities were practically the same as my neurotypical peers. i remember when i never needed to carry stim toys everywhere i went. just to name a few.
anyways, i have so much in common with my autistic friends. while we arent the same, we get each other on a level that i havent found with many neurotypicals. ive also found that i often gravitate towards autistic people without meaning to.
i think its nice that we can find community where we didnt really expect it.
like I’m sorry but I really don’t give that much of a shit about the love triangle I’d have really liked it if we got idk. any real Big Picture information about lumon or what cold harbor’s end goal was For lumon. like literally anything else.
“consistency is key” doesn’t apply to many disabled people.
going to the doctor and having them tell me that, and that i need to stick to a schedule they have deemed appropriate is completely comedic.
what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.
what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.
how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.
do you not think i have tried to stick to a routine and schedule like all the healthy people around me??
all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.
im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs. prt. 2 here (now going to make multiple more posts on this topic lol)
“my songs” are songs where you go “this song is for me it is mine.”
people can have the same “my songs” that doesn’t make them any less yours, they’re just also someone else’s mine.
its just songs that get you on another level, songs that represent you!