Migraines are so odd, like wdym I have a headache and now I'm temporarily blinded
I'm saving up for a bath seat and a wheelie tray that can be used in bed or on the couch... I know most of you are in a very similar financial position to me but if anyone out there has a few $ to spare, I'd really appreciate the help ✌️
my Ko-fi
oh my gosh this is so helpful ive always felt so stupid for not knowing how to do IDs tysm for the info 😭🙏🏻
We all know that feeling, we think our image descriptions are not good enough. We think they’re too short and insignificant. We wonder if it’s worth it posting one at all, but it’s always worth it. And here is why:
Even if an image description doesn’t mention everything in the image, it tells you a million things which aren’t in the image.
If your description is [ID: Reaction image of a nodding woman. /end ID] it tells you one million things. Such as: The image is not a tweet adding further information or context, it’s not a screenshot of a Snopes article debunking the post, it’s not someone disagreeing.
Those six little words, that nodding woman, it might not seem like a lot. It might seem like you can skip right over it, like it’s not worth mentioning - but it is.
An image could always be a wall of text explaining why OP is wrong, and simply knowing that’s not the case is super useful. Knowing that it’s just a reaction image, just a meme, just a photograph, is super useful.
Even a bad ID tells a lot.
it hurts hearing other disabled people talk about medical mistreatment.
like i am partly grateful to not be alone of course, but i really wish it wasnt a common or even standard occurrence.
breaks my heart.
whoopsies
[ID: bee’s top songs/tracks of the past 6 months. 14/20 of which are beabadoobee’s album “this is how tomorrow moves,” which is the entire album. the remaining 6 songs are: 3 sabrina carpenter “short n’ sweet” songs, 2 SZA songs, “good days” and “saturn,” and 1 olivia rodrigo song “making the bed.” /end ID]
okay it got better for sureeee!!
its a bit of a slow start for me personally, but i thoroughly enjoyed the 2/3 and then the 3/3 even more!
im not sure if i will get the sequel or not, ill read a few more books and see if im still thinking about emily wilde after that.
spoilers below
wendell and emily’s dynamic is hilarious after the proposal. they are so direct with each other normally, but when it comes to romance they just avoid actually speaking of it as such.
i really enjoyed how the town accepted emily’s way of being, that she is not good with attention or small talk or pleasantries. they didnt demand any kind of thanks from her, they knew she was thankful without it.
3.5/5 ⭐️
im reading emily wilde’s encyclopaedia of faeries right now and im not sure how i feel about it.
like i like it dont get me wrong. i eat anything up that has fairies of any kind.
but im a very.. emotional person, and so the format of the book being emily’s diary, and her being quite a.. professional and almost stoic? person, doesnt quite engage me as much.
maybe she taps into her emotions later in the story (i’m about a 1/3 of the way through) so idk!! thats just my thoughts so far
what if i only drew disabled characters forever lmfao
fanart? yeah but theyre all disabled now.
oc? yeah theyre all disabled too.
oh youre sick of seeing disabled characters?? too bad im sick of not seeing any.
gonna fucking roll a dice of disabilities for every drawing out of spite. :)
physically disabled people who are also fat deserve mobility aids just as much as physically disabled people who are skinny.
we also deserve to have mobility aids that fit us, we shouldn’t have to settle for ones that don’t meet our needs. whether it’s having a high enough weight limit or being wide enough or being sturdy enough, we deserve that.
it doesn’t even matter whether a person is fat because of their disability/ies or if they’re disabled because they’re fat. that person still deserve good mobility aids that meet their needs.
[this is a post about fatness and physical disability, derail and i will steal your mail for three months and two days]
tysm fatigue
Receive message, be too busy/tired/stressed to respond right away
???
It has been long enough that responding without preamble would now be Weird
never speak again.
Shout out to people who use adult diapers
Shout out to people who have chronic UTI
Shout out to people who have catheters
Shout out to people who have urostomys
Shout out to people who still wet the bed
Shout out to people with kidney scarring
Shout out to people who deal with kidney stones
Shout out to people with kidney cancer
Shout out to people with kidney failure
Shout out to people who I didn’t mention but still have kidney/urinary tract issues
I love you, I know it sucks, the judgement sucks, the symptoms suck. You’re not gross, it’s okay to talk about it. Your suffering isn’t taboo, never let anyone treat you like it is.
Hello! I'm going to be running some lessons on queer stuff in my highschools Queer Student Union, and I plan on doing one or two days dedicated to us intersex people. What core concepts do you think i should I teach someone who has never even heard of intersex people before?
Oh excellent! I have a lot of recommendations, so this is going to be a long one.
What is intersex, and what it isn't - We are people whose natural sex characteristics fall outside of what is typically male or female. Here is a list of intersex conditions/variations you can use as examples.
Being intersex is not the same as being transgender or nonbinary, and is a separate category from gender identity; you do not transition into being intersex. Intersex is not a third sex, but rather an 'other' category, for those whose natural development does not fit typical ideas of male or female bodies.
Not all intersex people identify as LGBTQIA+, which should be respected, just as it should be respected that intersexuality is a valid and included reason someone can consider themselves part of the community. Intersex people are included in pride.
We are not disordered for our intersex traits, intersexuality is a natural occurrence in any population with males and females. Some intersex variations do come with associated health conditions, but it is not the intersex part of the variation that is the health condition, and not everyone with intersex traits has health complications. I would recommend this page We are More Than a Disorder, and this statement on DSD terminology from InterACT, one of the most prominent intersex advocacy groups.
It is not in our best interest to forcefully sort us into the male & female sex binary. Intersex people can be any gender and may consider their sex to be male or female (this may or may not be in addition to being intersex. Many of us consider ourselves to be intersex males or intersex females, and some of us consider ourselves to just be intersex) It is wrong to say phrases such as 'all intersex people are male or female', or 'intersex variations are sex specific'. Sorting us into this binary comes with the caveat that we are 'wrong' males or 'wrong' females, rather than normal, fully formed, intersex human beings. This is the basis of the oppression we face.
Be sure to note that no intersex people, including those with genital variations, have both reproductive organs, we are not H-words (good time to add that this word is outdated/derogatory and I considered a slur). A hermaphrodite can only come from a hermaphroditic species, such as snails and worms. The use of the term hermaphrodite itself should be discouraged, even in context of animals. A term like monoecious is much better. The term hermaphrodite and pseudohermaphrodite used to be medical terms for us, and was commonly used in the early days of intersex activism, such as here. An intersex person may reclaim this word, but it is inappropriate and wrong to refer to an intersex person this way.
Intersex variations are not rare. We make up over 2% of the population (there is no accurate statistic because of a number of factors, intersex variations are extremely underreported, or erased from medical records). We are a widely invisible group who has been purposely erased with medical violence for decades. We are considered "rare" because of 'corrective' and 'normalizing' treatments. Intersex healthcare as it currently stands is more concerned with making us 'look normal' rather than making sure we are healthy. I would recommend reading @dabwax's paper Medicalizing Sex: The Erasure of Sexual Diversity, and this TED Talk by Georgiann Davis. include what you will from that in your lesson. Don't skimp out on the medical erasure part, it is very very very important for anyone learning about intersex people to be aware of just how far behind our movement for bodily autonomy is.
These medical interventions are not a thing of the past, and happen in all of the grey shaded countries on this map. Not only do they happen, they are often considered proper medical protocol.
I hope this is helpful! Good luck!
getting the cancer response is particularly funny for me.
i had cancer. thats what made me chronically ill.
telling people that seems to blow their minds.
theyre like no but cancer is the worst and you dont have that now but you had it before so youve had both cancer and being chronically ill but like cancer is worse and-
they dont know what to do with that. they tried to make a smart comment and it failed miserably. its funny to me. (i have to laugh or ill cry)
Telling a chronically ill person "at least its not cancer"
Or someone who's disabled due to a tragic accident "it could've been worse it could've disabled you more"
Or anything along the lines of "you could be dead or more disabled be greatful" I hope you rot in a hole where everyone you ever loved forgets you ever existed and you have to sit with that like in coco where you disappear when you're forgotten because that is so insanely rude and even more disgusting and if you don't know how to talk about disabilities without trying to "look on the bright side" or try and cheer people up about it maybe you shouldn't talk about them because some disabilities just are and they're always going to be and there's nothing anyone can do about it
And if someone is dying from their condition but its taking years instead of being fast like tv and stuff portrays it pls for the love of God don't tell them they "aren't dying fast enough" or "weren't you dying last year"
This post is specifically in reference to all the horrible comments able bodied people leave on disabled ppls social media's where the person shares their experiences
happy new year, i’m still disabled!!!!! crazy i know but here i am being chronically ill in 2025 like a loser
ive come up with a 3rd webcomic idea fhjdj
i have not started any of them.
well they have characters and a rough storyline but.. thats it.
anyways maybe ill actually start one for real this year.
no because it just absolutely enrages me when people consider themselves a “freedom fighter” or an “activist” or whatever the fuck you wanna call it.
but then they dont apply that to all minorities.
why is one minority less worthy than the other?
why arent more able bodied people fighting for disability advocacy?
see disabled people as humans, as peers, as equals.
we deserve access to everything you do. we deserve the chance to have a happy and comfortable life just as you do.
dont push us out of sight and out of mind.
we do not deserve that. we are equals.
Autism Speaks Canada is "concluding its operations" on January 31st 2025!
theres been 2 times in my life where i lost every friend i had for being sick its ruthless out there
I didn’t get a lot of love growing up. Things got worse the more queer I became.
I love the way our community does found-family. I spent most of my life finding lost queers and helping them. People come and people go but I was always welcoming people into my family. Always giving what I could give. Always sharing what I know. Always sharing connections.
When I got sick everyone left. Everyone left and I am a ghost.
Turns out when you give give give give and give…people are happy to take.
They don’t come back for you when you need it.
They leave when there’s nothing left to take.
I prefer Musa in red Enchantix
let's recap what we've learned about the United States in the last few days.
things that are terrorism:
allegedly shooting a healthcare CEO whose company generated more pure profit (not revenue, profit) in a year than the GDP of 94 countries, exclusively by denying coverage to people who pay for it
a 42-year-old mother of 2 using the wrong combination of 7 words during a heated conversation with a call center employee at a health insurance company who was in the process of denying her health coverage.
things that are not terrorism:
mass shooting in a Black church to incite a race war
going to a BLM protest specifically to kill protestors
a neo-nazi running over a crowd of people, killing a woman
targeting and killing 23 latinos in an el paso, texas walmart
killing 12 people in a theatre, shooting 58 others, rigging your apartment with explosives
a QAnon groyper killing 7 and shooting ~50 at a 4th of July parade
killing 3 people and shooting several others at a Planned Parenthood in defense of the unborn
stalking someone relentlessly and then killing them and their child despite months of the victim making police reports
any one of the 1,200 murders committed by US police yearly, the vast majority being minorities
tightening your border while ~100 immigrants (including children) drown every year in the Rio Grande
United Healthcare killing an unnknowable number of elderly people by using faulty AI to deny medically necessary coverage
Aetna killing a woman by refusing to cover her cancer care
Blue Cross killing a 6-year-old by denying her appendicitis surgery
Cigna killing a 17-year-old child by denying her liver transplant
the pharmaceutical industry killing half a million people with opioids in the name of producing revenues in 2023 that rivaled the GDPs of countries like Spain, Mexico, and Australia.
the United States killing 45,000 people a year because they can't access health coverage
make sure you keep this guide handy the next time you find yourself interacting with your insurance company or any other millionaire, billionaire, or an individual who is part of a protected class such as a CEO or president of a corporation.
agreed, making things i need pretty?? instantly changes my perspective on it.
decorating my feeding pump and using fun tube tape has done wonders for my mental health and not being able to intake much besides water by mouth. making things your own when you're disabled is such a necessity for me. 
you guys made luigi mangione trend for days and I need to see the same energy for brianna boston. she is a 43 year old mother of three who ended a phone call with blue cross blue shield (after being denied a claim) “delay deny depose, you people are next” and is now being held under a 100,000$ bond and could face FIFTEEN years of prison if charged. she has no weapons, her record is clean, and yet she is being held behind bars. they are afraid of the public and are trying to subdue. do not let them!!!! be outraged that our freedom of speech is being threatened!!!!! deny defend depose! free brianna boston!
im down when do we start
I need a ballet class with just disabled and chronically ill dancers so I can get back into dance without being yelled at for my limited range of movement