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just like going through the members of my family and my friend groups one by one, i can't think a single damn person i know who does not have a disability. ARFID. Autism. Metal rod in the spine. Arthritis. Cancer in remission. Long-term effects of repeated concussions. Bad back. Exhaustion. Crohn's. EDS. More Autism and ADHD. Migraines. Periods that lay them out for a week. Chronic depression. Alcoholism. Bipolar. Cataracts.
I do not know a single person who is not disabled, typically in multiple ways, and we all face increased disability as a natural consequence of aging. Literally every person on the planet becomes disabled on a long enough timeline. Yet we still talk about disability and organize around it as if it isn't social, economic, and contextual. people treat disability as an innate quality that some people have and some people do not have, and as if there is some large class of intrinsically abled people who are benefiting under capitalism and are withholding the fruits of their abilities from us or something.
i saw this post on twitter months ago that was like "I need people to understand that if you are in a relationship with a disabled person you are going to have to do more than them. you're not disabled and so you're going to have to do more of the work (around the house, logisticially, etc). that is what you owe them as an abled person."
and it just baffled me. because i have only ever seen disabled people in relationships with other disabled people, caring for one another in a stitched-together, messy web of interdependence and missed deadlines and dirty dishes and acceptance and love, not because disabled people are ontologically more generous than non-disabled people but because non-disabled people don't even actually exist.
the mythological abled person who can work a full time job, keep a clean home, do all the dishes, buy all the groceries, cook all the meals, run all the errands, stay on top of all the bills, carry everything, dash up the stairs, stand on their feet for hours, and have boundless energy without any mental consequences to that does not exist. it's an ideal created to oppress us all. it is an impossible standard the reification of which disables us all.
there is no one on this planet who is not disabled under capitalism and colonialism. there are only people who lack the class consciousness to recognize that they're disabled.
it's gonna have to be us taking care of one another. it's going to be the disabled caring for the disabled. it always will be that. that is the human condition.
I know we talk a lot about keep jumping on boxes, but I'm honestly so grateful for Joe hills' knife theory; a variation on spoon theory that says once you're out of spoons, you can choose to take knives instead in the knowledge that it will hurt later. and the number of times I've told myself 'ok let's take the knives' is so high that I've found it really helps to acknowledge it. Thanks, Joe
Since the post I made last night about improving executive functioning was so popular, I figured I should pull these out of my comments and give them their own post, in case it's helpful for people.
I have worked with the publishers of all of the books linked below and can vouch for their psychology books. The publisher of most of them, New Harbinger, is an extremely credible evidence-based psychology publisher.
Obvious disclaimer that everyone's brain is different and what works for someone else may not work for you.
Is there evidence that executive functioning can be improved? Yes. This book appears to be a very thorough overview of the field, and contains both advocates and detractors of cognitive training, for a balanced perspective. From the table of contents, I would really recommend jumping straight to Part 3: Developmental Perspectives for executive functioning (EF) writ large.
Certain therapy modalities are specifically designed for skill-building in areas like impulsivity, decision-making, emotional regulation, and cognitive flexibility, all of which are EF skills or very dependent on EF skills. Dialectical Behavior Therapy (DBT) is probably the best field to look at for these - skill-building in those areas is its core goal.
Some DBT workbooks:
The Dialectical Behavior Therapy Skills Workbook: Practical DBT Exercises for Learning Mindfulness, Interpersonal Effectiveness, Emotion Regulation, and Distress Tolerance
The Dialectical Behavior Therapy Skills Workbook for Teens
There are also a lot of workbooks for ADHD that are sometimes more broad but also can help with executive functioning:
The Adult ADHD and Anxiety Workbook: Cognitive Behavioral Therapy Skills to Manage Stress, Find Focus, and Reclaim Your Life
The CBT Workbook for Adult ADHD: Evidence-Based Exercises to Improve Your Focus, Productivity, and Wellbeing
The Neurodivergence Skills Workbook for Autism and ADHD
General executive functioning workbooks:
The Executive Functioning Workbook for Teens
Executive Functioning Workbook for Adults: Exercises to Help You Get Organized, Stay Focused, and Achieve Your Goals
Hope these are helpful to someone!!
Autism is developing entire species with full evolution paths, hierarchies, and unique customs for the world from just a single thought that you then expand on.
(I also spent approx 5 hours worldbuilding the other day)
ADHD is developing the plot for an entire book while zoned out and daydreaming and then getting so immersed in it that you spend the next week developing characters, their traits, places, development, twists and turns and just hoping the creativity holds up and you'll get to finish it.
(I spend approx 5 hours making character moodboards today)
I wanna format my infodumps into video essays but I know my ADHD would make me lose interest after 1 hour
Sometimes I start to wonder if I really am chronically ill. Do I really wake up every day with pain or am I just faking it all the time? I know other people actually have these issues and they are very much real, but to me, I don't know what is real for myself anymore. I try so hard to be normal, yet the pain comes back. It always will come back. I wake in the mornings with a killing pain surging through my jaw. I know that last night I must have been fighting monsters, swinging swords that allow me to defeat these dragons lingering in the mountains. Yet, today as I wake up the pain isn't from a dragon or those monsters I fought, it's from my trying to dislocate once more. The throbbing pain in my head isn't from being flung against the wall of a dragon's den, that pain is from my chronic migraines that linger in me causing it almost impossible to eat and hold my food down. That surging sensation that spirals in my belly, drifting up towards my heart and seeping through my veins isn't the poison of my enemy trying to defeat me at last, this is the anxiety that causes me to isolate myself until everything is fine again. The anxiety that holds me back from chasing these wild imaginations because I'm not okay. I don't think I ever will be okay, but am I really ill?
A lot of folks in the notes are saying how this is social anxiety. Lol whatever op was describing is not social anxiety.
They don't like being perceived. Idk how hard that is to understand.
For me, social anxiety is about freaking out over social interactions. Of course, being perceived and judged is a part of it but it isn't the main thing ykwim?
But its different for everyone let's all remember that.
Omg omg omg. It all makes so much more sense when you realise it's not social anxiety but a fear of being perceived.
Why do you feel more comfortable with a long coat and a mask as opposed to summer clothes?
Why do you DESPISE taking pictures? Especially if it's someone else and not you taking them.
Why do you feel like you have to stop doing whatever it was you were doing when someone passes by?
Why don't you want to tell anyone how leisurely you go about your day, taking a nap, going for a snack, sitting on your phone playing games etc. because you know they will comment on it and even though it's not negative or mockery it's still feels like you've been perceived?
Why can't you make eye contact? Why can you do it only if the other person is looking away but the second when they look at you you stop listening and when you're the one speaking you can't bear to look at them because you know their eyes are on you and they are perceiving you?
Why don't you want to dress excessively or wear nicer clothes? Because you will stand out
People mistake you for shy because you don't speak often, but it's really the fear of drawing attention to yourself more than it is the things you actually say, isn't it?
Why do you hate overpopulated areas even when no one is speaking? BUT you still feel more comfortable when more than one person is in the room (but not too many!) so that the burden of being perceived is directed on someone else and you can safely lay back just observing the scene.
It's all a defence mechanism
me and @burningstars have created the term hyperspin so like when you hyperfixate on your special interest!! :>
(neither of us know if this is a thing or if there is a term for it already ohageaoihgeaoiheg /lh /silly)
i think that… approximately 100% of the time, parents, teachers, etc… have this misconception that neurodivergent kids & teens don’t know anything about how to handle their neurodivergence.
for years, i suffered through people making suggestions of things that were things i had done, and either weren’t worth the effort or they actually made things worse. i told them this, and if i was still having any issues with the same problem they’d say something about “well if you’re not gonna listen to any suggestions…” when I did. they’re the one who didn’t listen when i told them that doesn’t work for me. They assume that because I didn’t try it in front of them (which is often impossible), I never tried it. I tried doing my homework as soon as I got home. I tried doing my homework at the table, I tried working where I was comfortable. I tried listening to music, I tried working in silence. I tried using a planner, I tried setting reminders on my phone, I tried. I tell people that I have executive functioning issues and they say that I have to work on it like I haven’t been doing that as long as I’ve had to do things and it’s so much better than it was before. I’m as able as I am now because I’ve spent 18 years working on it.
One of my friends has ADHD, and at one point when her grades dropped her parents took her phone, despite her telling them that the only way she can focus on her homework is to listen to music, for which she needs her phone.
I was in a study hall with another friend, who also has ADHD. Sometimes, they would be able to focus and do their work. Others, they would end up being entirely unable to and would do other stuff. The “instructional support” person would start bothering them about it, insist that they try. As if they hadn’t already done so.
I am tired of watching people assume that neurodivergent people aren’t trying, or we haven’t tried. We’re always trying.
Mine was Monster High Dolls (though I’m still unsure if that one was a special interest), LPS (littlest pet shop), and rock collecting
There’s probably more, but I’m not sure
I can’t believe I forgot about mermaids 🤦 especially considering they were an interest of mine for the longest time
Mine were collecting angel statues and A Christmas Carol by Charles Dickens.
Don't usually do this but does anyone has any useful advices how to deal with ADHD burnout while it's already happening? And not just how to prevent it.
Google shitty advices they're comically bad.
I guess useful information for nd people online will never be a thing unless you ask other neurodivergent ppl.
My phone isn't even aware that neurodivergent is a real word.
When Autism meets ADHD.
two things: I hate change and having my routines interrupted. I hate things being the same it’s boring
obviously, ADHD is not the same for everyone who has it. if you dont have ADHD, or aren't sure, but experience issues with executive function, memory, impulsivity, and emotional regulation, these tips can still be helpful!!!
practice radical self forgiveness
keep a notebook/journal
give your items a home
keep baskets, boxes, and bins, especially clear/mesh or anything that lets you see whats in it.
buy fruits/veggies/anything that spoils super quick the day youre going to use it
keep a list of easy meals
keep a trash receptacle in Every room
when you notice something dirty piling up, clean for just 5 minutes
do NOT worry about completing necessary chores. just do a little
if you need it frequently, keep it in sight, but off the floor if you can.
check under your bed, couch, or other corners where stuff can pile up when you get that random energy spike.
take a multivitamin, and cut down on soda (or other highly sugary food/beverages) if youre able. seriously!
specifically for the medicated!
take your meds, go to bed, and wake up at around the same time every day.
being vitamin deficient can make your medicine less effective. magnesium, B vitamins, omega 3s, and vitamin D might help. if you dont eat a lot of fruits, veggies, and fish, you are likely deficient in these at least.
stay. hydrated. For the love of god
try things you had trouble doing before medication
dont expect medicine to fix you
dont blame medicine for all of your improvement
no 2 people are the same, and what works for me might not work for you. i am likely on the spectrum, and i wasnt medicated at all for my ADHD until i was 17, and i wasnt on the right medicine until i was 21. i would recommend keeping that in mind while considering my tips!!
i will elaborate on these tips under the cut!
practice radical self forgiveness
i think this is the most important of all of these tips, which is why i put it first. i know its easy to look down on ourselves for our disability. but you must acknowledge this: you are disabled. you have a disability. you cannot hold yourself to the "normal" standard. more than likely, you grew up in an environment that didnt teach you how to navigate the world as you are, either. thats okay! we must teach ourselves.
try to view yourself as both the teacher/parent, and the child. when you forget something important, or make a careless mistake, or give into impulses, or say youll do it later and dont, or go too long without a bath, or let the trash pile up, you have to be kind to yourself. the child within you needs it. these things simply dont come naturally to us.
you must apologize to yourself as the child: im sorry i didnt pick up the trash. i know it makes the place dirty, and overwhelming. i will do my best to improve. i love you. you must forgive yourself as the parent: its okay, pumpkin. i forgive you. i know you didnt mean to make me overwhelmed, or to invite dirt into the home. i will help you improve. i love you. you also must do the reverse, apologize as the parent: im sorry, child. i did not teach you how to know you should pick up the trash. i did not teach you to recognize dirt. i will do better, and i will help you as best i can. i love you. forgive as the child: i forgive you. i know you are doing your best to lead me, and teach me what you know. you werent taught to pick up and see dirt either, were you? as long as you support and love me, we can figure it out together. i love you.
i know, to think this way can feel infantilizing sometimes. and its much harder to teach ourselves these habits. if its available, its okay to ask for help. just dont be too hard on yourself when your disability impairs your ability to be "normal." our habits die harder than most. even if you forget to maintain a habit, just do it when you remember.
2. keep a notebook/journal
i know, i know... every ADHDer HATES this tip. but it seriously works. dont hold yourself to a rigid standard when using it. i prefer dot grid journals, so i can write notes, or sketch, or make lists, or otherwise neatly divide pages how i wish, rather than it being blank/horizontally lined.
i dont keep a to do list all the time, i dont journal every day, i dont even look at the thing every day. there is no right way to use your journal. i use mine for many things at once: if i forget a notebook for class, or my laptop dies, i put my class notes in there. i put random doodles, layouts, oc pages, Big Feelings, and weekly/daily plans/to do lists. i dont obsessively keep up with it, or update it every day.
i DO use it when i feel overwhelmed. if i feel like 50 different things need to be done in 3 different domains and i dont know where to start, i write them down as i think of them. here is my typical order of operations (it took me a while to figure this out. i struggle deeply with prioritization.)
first, i write everything down i can think of that that moment. second, i label them necessary, important, and least important. third, i label how long they take (most time, some time, least time) finally, i start with the most important one that is the least overwhelming
now, i dont have an easy time labeling importance and time taken, of course. that can be the hardest part. but i dont worry so much about accuracy of my labels. i havent got it all down because i will almost always prioritize schoolwork over housework and hygiene, but we cant be perfect. the MOST important thing is always your health and safety.
dont worry about finishing a todo list, either. the most important thing is getting stuff you can forget on paper where you can look back at it when youre overwhelmed. you should keep your journal somewhere you access frequently or can see it.
also, the journal helps with big feelings. if youre feeling that white hot anger, the itching impulsivity, or rejection sensitivity, or anything that makes you think "i cant do this," start jotting words or pictures down. it can be anything. this will help when you feel that feeling the next time. we often get stuck in loops because we dont remember what caused a feeling or conflict, so we make the same mistakes. when you write it down, you can take your own word for it when you make a mistake. this makes it easier to recognize when youre falling into a pattern, and makes it easier to change your response.
3. give your items a home
if you arent constantly using something, or go more than a day without using it, send it home. an objects home is just somewhere it comes back to when its not needed, so that it isnt taking up space where it isnt needed. things like snacks, laundry (clean and dirty), art/craft/hobby materials, coats, electronics, plushies, anything. personify your stuff just a little bit- if you cant use it anymore, it cant find a home with you-- you have to send it on trash vacation. your coat wants to go home! pick it up and take it there when you can. its okay if that home isnt permanent, or if you lack materials/money to create a proper home. our coatrack is a chair right now, which is a much comfier home than the floor.
4. keep baskets, boxes, and bins, especially ones that are see through/visible
this helps you give your items a home. if you buy storage, get something stackable too, but even a cardboard box works. keep like objects together! and keep them near what theyre used for.
5. buy fruits/veggies/anything that spoils quickly the day youre going to use it
its sooo tempting to try to eat healthy and save money by stocking your fridge full of healthy produce and raw meat, but unfortunately i know how much money we waste forgetting/not having the energy to use them. if you need a fresh fruit, veggie, or meat, for something you are definitely planning on cooking, buy it the day of. if you have something in your fridge you dont think youre going to use before it rots or molds, stick it in the freezer!!!
also, frozen and canned fruits, veggies, and meats are just as good as fresh. they stay good for so long you dont have to worry about it going bad.
6. keep a list of easy meals
things that you can get down your gullet easily, and prepare easily. 1 pan meals, sandwiches, hotdogs, hot pockets, instant oatmeal, canned meals. i typically keep instant oatmeal and those tuna creations packets, as well as club/ritz crackers. also, skillet meals like velveeta skillets and hamburger helper are awesome, just keep some frozen ground beef (or meat of your choice) and youre good to go!
also, eggs last for MUCHHHH longer than the sell by date. i have had eggs 3 months past the date (note im american so they are under refrigeration) that were still good, but obviously that long past the date you should do a sniff test after breaking an egg. eggs are awesome in terms of ease of prep. heat your pan up to temp before cooking and they wont stick so bad. use cheese or milk to make a desirable texture for scrambled eggs or omlettes. dont forget salt and pepper (necessary...) you can also stir an egg and peanut butter into instant ramen for some actual nutrition. i also keep onion powder, paprika, and cayenne for yummy eggs.
in the egg vein, french toast is extremely easy and filling, and will sate a sweet tooth with some syrup!
7. keep a trash receptacle in every room
it doesnt have to be big, but having a designated trash spot in your bedroom is super helpful
8. when you notice something dirty piling up, clean for just 5 minutes
you dont have to clean to completion, thats overwhelming!!! but when you see something gross or messy and it bothers you, just take a couple minutes and pick up a little. play a song and tidy until the end of it! cleaning isnt all or nothing!
9. do not worry about completing chores, just do a little
in the same vein as the last one, the most important thing is getting the ball rolling. cleaning can be really hard because of the overwhelm of how bad it is. you can make it less bad a little at a time!
something ill do is sort out and scrape off the dishes before even thinking about doing them. that way, they take up less space and it doesnt look quite as bad. then next time i come to them, i do a bit more. or ill pick up the dirty laundry off the floor, then ill put it next to the washing machine, then ill wash/dry. i dont worry about folding and putting away unless im up for it-- its more important that theyre clean at all.
10. if you need it frequently, keep it in sight, but off the floor if you can.
remember, the floor is the stuff killer! if it must be on the floor, designate a spot.
11. check under the bed, couch, chairs, and piles if you have a random energy spike
i have found so much stuff i didnt even realize i lost. this also prevents pests and the accumulation of dirt.
12. take a multivitamin and cut down on soda (or other highly sugary foods) if youre able. seriously!
in high school i tried eating low-carb for a while. i didnt maintain this diet, but what i did maintain was not drinking soda regularly. when i say my head cleared and i felt less groggy, i mean it. if youre in the position, pay attention to the amount of sugars in what you eat and drink.
i know the "eat well" advice is given out too much, but nutrition seriously matters. if you care to work on your nutrition, do not worry about fat, carbs, or anything like that. just cut down on how often you eat highly sugary foods. you will feel so much better just from that. i have a sody pop as a treat every now and then and i have a whole other appreciation for it :-)
for the medicated:
take your meds, wake up, and go to bed around the same time
your body works on a schedule whether you want it to or not. pay attention to this schedule and try to work with it. when do you usually get tired? when do you prefer to wake up? when do you usually use the bathroom? this goes for nonmedicated people, too. your body will thank you!
2. vitamin deficiency can make medicine less effective. magnesium, B vitamins, vitamin D, and omega 3s can help.
these vitamins are all harmless, except for magnesium, which can slow your heart rate and cause shallow breathing IN HIGH DOSES. luckily, stimulants tend to deplete vitamins/electrolytes like magnesium, which can cause twitches and spasms. dont get large doses of these, 100% daily value is just fine.
3. for the love of god stay hydrated
imagine you are a machine and water is lubricant. stimulants suck up this lubricant to make you run more effectively. however, without extra, the machine will still run like shit. try to drink a whole glass with your medicine, and keep a cup to fill thru the day.
4. try things you had trouble with before medication
its super easy to get discouraged from something when you feel like a failure! try it again now! it may be easier. be sure to give yourself praise for what you do! your effort, your success, anything! this will teach your brain to see stuff through and help you feel and be more competent!
5. dont expect medicine to fix you
adderall, vyvanse, ritalin, none of these are a pill to fix you. they give you the capacity to work on yourself. dopamine is the "go get it" chemical. typically, ours is low and irregular, so we dont feel the drive to "go get it" when we need to, and we dont feel enough of a drive to see something through until we "get it." you still have to put in a lot of effort to fix habits and do work, medicine makes it so its easier. for me, it also reduces Noise in my head, so i can focus better. i still have to put effort into everything, its just less painful.
6. dont blame medicine for all of your improvement
again, medicine gives you capacity. YOU still do it all! its all you!!!!!! :D
thank u for reading i hope these are helpful! i feel like adhd tips are veryyy all or nothing and never explain WHY they may help, so i hope my explanations are helpful!
This post is just like those "How to Study like a Harvard Student!" Things but for ND people with executive dysfunction who can't even START studying.
Listen to Music, seriously it works so well. If you speak multiple languages, listen to music in the one you ARE NOT using. Listening to music w/o words is good for things like essays and reading, but with things like math, I 100% recommend listening to anything you really like. I can leave song reccs for no word songs if anyone wants them.
Put on a movie, TV show, or video you've already seen a million times. It works the same as the music, but you're more likely to be distracted. It's important that you've already seen it. Otherwise, you'll just end up watching TV.
Buy stationary that you LIKE and ENJOY USING. If you see pens that you REALLY LIKE but the other pens are cheaper, get the ones you actually like. You will use them more. You will *enjoy* using them.
Not so much related to executive dysfunction, but I HIGHLY recommend getting folders for your classes. Even if it's only for a few, if you pull it out at the beginning, you'll have all your stuff inside and a place where you can put your papers instead of just shoving it into your bag.
Let yourself stim out loud while you do homework. Seriously, it can help you remember things and help you stay focused.
Eat your favourite snacks or drink something you enjoy drinking. It makes doing things so much more bearable, plus free dopamine.
(Edit: I reblogged some of people's additional thoughts)
I can't really think of anything else, but feel free to add stuff in the comments.
Disclaimer for the masses, I am not a doctor. These are from my own personal experience as someone w audhd. :)
I'll get called a fat fucking bastard for saying this anywhere but in mentally ill/Neurodivergent spaces, but water. Water is so goddamn tasty when it's right. A glass of iced tap water (when it's safe) is fantastic.
Bottled water is entirely different. Purified with minerals tastes like electrified plastic and static. Spring water tastes like literal heaven. It tastes how water in ads looks.
I'm hyperfixating on The Outsiders again, I love my life rn
Wing flapping, tail wagging, or something of the sort would be a wonderful stim, btw
"I hate being interrupted!" I say, being someone who interrupts people at least once I'm 99% of conversations I have