Latest Posts by zylahbee - Page 4
guys what wards do young people go to, im always the only young adult in my wards, im clearly missing out on the cool areas 😔😔
oh fuck yes.
kind of deeply obsessed with the idea of everyone thinking helia is kind of a dick. like not riven-levels of asshole but most people find him off-putting and hard to get along with by virtue of him being such an intense person. and he’s the kind of person who does things to the beat of his own drum. he’s very one track minded in that way and it makes it hard for others to collaborate with him and find him agreeable on a surface-level capacity. even still people find him likable but in a more distant, unattainable way. but anyone who spends time with him one-on-one and has a conversation with him realizes that he’s actually super non-judgmental and easy to talk to. and he really does like connecting with people, he just doesn’t go out of his way to spend his time on things that don’t catch his attention. and he’s honestly just super sweet.
in contrast, flora is affable and beloved and on average treats people so kindly and sweetly. so everyone’s impression of flora is that she’s a gentle and sweet person who rarely has a bad thing to say about anyone. and while this is partially true, she oftentimes has her private reservations about people that she only truly feels comfortable voicing with her close friends (ie the winx) but won't ever hide from anyone if directly confronted. her natural sociability makes it so that she's very easy to get along with and collaborate with, but people often underestimate her sharp judgment of character and tend to reduce her to her gentleness when she's much more strong-willed than she comes across.
& when helia and flora get together, it's the coupling of two people who are more understated on the surface but actually quite intense to their core. they match each other's freaks <3
oh my god i had no idea these were a thing maybe i could bake again 😭😭😭
If you're ambulatory and struggle standing to cook, consider a "perching stool" for the kitchen. They're made to make cooking safer and easier for disabled people and there's a lot of different kinds. I wish I had known about these when I could still stand.
i am constantly worried that my unpredictable health will lose me all my friends. you might say thats irrational, but it has already happened to me twice.
i have been called flakey, unreliable, a downer and probably more i havent heard. and i cant help but wonder, if the world around me was accessible, would i be any of those things?
the lengths i go to for relationships never feels flaky or unreliable to me. but maybe to other people it doesnt matter why i cant show up sometimes. maybe all that matters to them is a yes or no are they here with no context.
try be accessible and lenient with your disabled friends please..
ah yes the fun of will i surprise the doctor with a personal relief method they havent heard of yet 😇
THIS
If you're a disabled young person, you've most likely been hit with the "pfft you think you're in pain now? Just wait til you're my age" bullshit from older people at least once. Everyone talks about how invalidating it is
But I haven't seen anybody mention how it's terrifying, too. Yes, I know health deteriorates with age. I know that old age is a disability unto itself. I know that the healthiest person alive will start getting aches and pains past the age of 40 and may even need mobility aids
I know all this stuff. And it always makes me think "yeah, if I can't walk without joint pain even while using mobility aids AT AGE 21, how painful will life be for me at the age where it gets painful for everyone?"
And it's hard not to feel like I'm doomed, y'know? Where most people get a period of health that they wish they appreciated more when they start to lose it, my starting point was a body that doesn't work properly and it's only gonna get worse from there. It's worse every fucking year.
TLDR stop telling disabled young people that their pain will only get worse to the point of being unimaginable as they age, WE FUCKING KNOW
Bloom redesign 💙
Since the Finalists have been announced I suppose it’s time for me to post my submission!
Imagine my shock and surprise finding out I made it to THE FINALS!!!! Winx club truly means so much to me and I wouldn’t be the artist I am today without it! If you told kid me that the Winx team liked our art enough to pick us in top 25 I wouldn’t believe you haha!
Thank you Winx Club. This has really been like a dream come true! 💕
I hate that there's no way to be disabled that people will accept.
If you show joy, or acceptance in your disability, you're not really disabled and no one will take you seriously when you do complain and well it can't be that bad and oh I'm sure you're used to it.
But if you're miserable then you're whiny and annoying and people hate that it's "all you talk about" and its always ugh you're always tired and can we please stop talking about this it's making me depressed and oh I'd kill myself if that happen to me.
If you're happy you have everything figured out and don't need help anyway but if you're miserable you're a whiny bitch that can't just suck it up. There's no winning
People: the normal amount of pain is zero
Me, chronically ill: sounds sketchy but okay
kinda proving my own point by posting about consistency and then getting really sick and going to hospital jfhdkd
“consistency is key” doesn’t apply to many disabled people.
going to the doctor and having them tell me that and that i need to stick to a schedule they have deemed appropriate is completely comedic.
what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.
what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.
how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.
do you not think i have tried to stick to a routine and schedule like all the healthy people around me??
all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.
im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs.
so i spent a day admitted, the went home after having some relief. then it all came back full force 12 hours later so im back in emergency. lol
on day 5 of a migraine get me out of here
im being referred to multiple new specialists and being put on multiple new medications im so exhausted and im sick of not getting any answers and only short term relief
gave up on home care and went to hospital on day 15 😭
on day 5 of a migraine get me out of here
🌊 aisha, fairy of waves!! ✨
one day i'll draw their wings...not today though LOL i love love love literally all of aisha's transformations but believix as a whole has a really special place in my heart 💕 which winx should i do next?? :0
i have so much art i need to get out of my brain its all stuck in there while i cant do any 😭😭😭😭😭
i dont know what it is anymore its day 14 and its still the same im losing it
on day 5 of a migraine get me out of here
on day 5 of a migraine get me out of here
look accessibility can and will be contradictory
I love a high toilet seat bc it means in don't have to put effort in with my legs, but people doing a chair transfer might hate it
an audio transcript at the end of a video might make it annoying for people using a screen reader
loud music for hoh people might make an event inaccessible for people with noise sensitivity
speaking longly and specifically for people who struggle with tone might make your message for people with cognitive disabilities
and the list goes on
but if you never start making your life and content accessible, then you're not helping anyone either. there's not a golden rule of accessibility but if you don't even put in an effort, that's when you become an asshole
I despise the fact that disabled people can never look happy. Or show any form of joy.
Because the moment we do, suddenly we are 'not disabled enough'. As if our existence is solely meant to be pain and misery.
you naturally grow out of a lot of unhealthy habits and I think that something that seeing obsessive self improvement culture in the early twenties crowd makes me sad about like. you will start to drink less as your world changes, you will get better at habits as your world stabilizes. your sense of self will solidify as you make mistakes waste time and figure out what works for you and what does not thru your own bodies rejection of it. you’ll be called to sleep earlier and wake sooner and to move your body bc it won’t bounce back with out stretching it out first like there are reasons older people are more regimented bc they don’t need to experiment as much anymore to find out what’s functional. It’s not 1 size fits all
Ok so, I just remembered how people in the comments of a tiktok video were being assholes, and I want to rant now :3
The video showed two wheelchair users at a train(?), who had just arrived to their stop to find nobody was there with a ramp so they could leave the train. One of them blocked the door so it wouldn't close, and this lasted for 15 minutes. The train was stopped for said 15 minutes. There was a button by the door, that said that it'd contact the driver when pressed. It didn't. People offered to go find the driver, and they came back with the news that there were no people in the platform to put the ramp. In the end, passengers had to go out, and place the ramp themselves, before the train could carry on. The wheelchair users had warned they were coming, and asked to have the ramp put there so they could get down. The platform turned out to have workers, they all just ran away because they'd never encountered the situation in which they needed to do this simple task.
Because of the workers' negligence, the train was forced to stop for 15 minutes.
Everyone's comments?
"Why did they block the doors and stop the train? So selfish" Selfish were workers who refused to do their job.
"What if someone had needed to get to their stop urgently? They shouldn't have stopped the train" It wasn't the disabled people's fault, it was the workers who were negligent.
"Why didn't they just wheel themselves down those steps?" They shouldn't have to risk their (expensive) chairs just because people didn't do what they were paid to do.
"If I had been in that train I would've been pissed, how dare you stop it" And you probably wouldn't have even thought about fixing the problem yourself, would you?
"Entitled assholes" Ok I'll leave you stranded in a train with everyone who could help you get down outright refusing to. Let's see who's an entitled asshole now.
If someone fights for accessibility, as much as it might be a bother for you, you do not have the right to be mad at them. If someone fights for accessibility, it is exclusively the fault of a world catered exclusively for able-bodied people.
So next time you think, "hey the consequences of these disabled people fighting for their rights bother me", instead of blaming them for this, help them solve the issue. This way, next time they will not have to fight at all.
Able bodied people, go out and fight for a fucking accessible world if you're not an asshole.
[ Able-bodied people are encouraged to reblog this post, but try not to derail ]
update i went to the beach that day it was fate
i miss the beach so much
“consistency is key” doesn’t apply to many disabled people.
going to the doctor and having them tell me that, and that i need to stick to a schedule they have deemed appropriate is completely comedic.
what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.
what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.
how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.
do you not think i have tried to stick to a routine and schedule like all the healthy people around me??
all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.
im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs. prt. 2 here (now going to make multiple more posts on this topic lol)
i am soooo out of it todayyy i cant ground enough to do anything but read and watch stuff rahhh
nothing feels real enough todayyy
THIS IS GENIUS WHY HAVE I NEVER DONE THIS
slay ty to ur partner for accidental allyship
People who spend a lot of time in/on bed, I have a recommendation for you... Go to some big and cheap store like Kmart and get yourself a kids activities tray!
My partner got this for doing crafts on the couch but we've repurposed it to be a writing surface for my bed-rot days. It's not perfect (I'd prefer a surface a bit higher, and it squishes these thicc thighs a bit) but it's a pretty good stop-gap for $10-20
some of you clowns seem real confused so let me break it down for you:
using the r word to call someone stupid or to refer to disabled people is not slur reclamation.
it is just using a slur.
never stop deal with this so this your periodic reminder that
⬇️
!! if you see someone write different online. unless they explicitly tell you something different. leave them alone. don’t comment on their write. don’t do anything unprompted to “help” without ask. it rude annoying we heard it million times promise. !!
⬆️
some people with language disorders. agrammatism. cognitive struggles. or write with symbol base AAC that not support grammar inflections.
yes we will sometimes write different than you use to.
yes it not “correct grammar,” you so observant (sarcasm).
no it not for fun, no it not choice, no it not writing quirk.
whatever you want say, we probably heard it million times. yes even if it friendly joke - n we appreciate you friendly. but please
great that it “actually help you read/understand better than full grammar.” some people may like you tell them that. but personally not want hear it too - my way write my disability, it about me n it not on purpose it out of my control. would rather you talk about how way break down concept (something can actually control n try really hard at) as easy understand.
“this just gave stroke/seizure/whatever ‘funny’ ‘edgy’ disability” joke. not that anyone make it would listen but. shut up. it not funny to me it not funny to stroke survivors or to seizure havers.
decide stop apologize for exist if it hard read. even if you have receptive language / comprehension / reading / cognitive / etc disability - it unfortunate but conflicting accessibility exist. (yes, do understand actually, because speak from experience.)
if you want know what am say please at least put in some effort to read it.
if after genuine try, still struggle, do what you do when you see tumblr post in “perfect grammar” you don’t understand - polite ask for explain or rephrase or summarize.
it still english, or whatever language person use. unless you actual look for it be turn different language, it still english, no you not need “translate.” (no don’t care that “translate” okay in writing quirk community because again. not writing quirk)
not “fix.”
and. understand sometimes we can’t rephrase in different way, even if that different way include still write different.
personally am allow other people answer “can you rephrase” questions without go through me first, for now, because of this. - but understand this is reluctant compromise. because:
understand sometimes we still sensitive to other people rewrite explain in perfect grammar. because have long history of people refuse put effort in read our stuff but instead always give more attention to people who write perfect, even if their writing not any less complicated than ours. because have long history of be charity case n get unsolicit “help” “translate” when we never ask.
because have long history of be forcibly spoken for n be misunderstood. because people who answer may (& many times do) get it wrong & we then have to spend more effort chase down n correct when we already struggle with communication, n that other version always spread faster than our correction.
so know other people who write different, don’t allow people rephrase at all unless go through them first. please also respect that even if inconvenient.
n on that note.
unless we give you explicit permission to you (like “you specifically can do it” or like above “can do it if someone ask,” or “anyone can do it all times”). don’t. don’t rewrite what we write into correct grammar, into perfect grammar.
don’t give random disabled person unsolicited help. it not friendly it not helpful it rude n annoying. not your charity case. who even are you. no one asked.
none. of. your. business.
not need your fix. get off moral high ground.
n like everything. there some jokes n comments that *some* people who write different may be okay with if they friend with that person make it - sometimes opposite of what this post say. if you not friend with that person then. maybe don’t.
people who write different not all same. sometimes okay or not okay with different things. but. this general see.
the first time you hear about [stuff am tell you in post] probably 456737th time we re-explain it. excuse us for be exhausted n done n our time be tired n angry n impatient.
this been a PSA.