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Myalgic Encephalomyelitis - Blog Posts

2 years ago

As a British person living with severe M.E., (plus fibromyalgia and some other issues), I would ask that you please sign and share this petition to get Royal Devon and Exeter NHS Foundation Trust to make accommodations for Alice Barrett, who has very severe M.E. and P.O.T.S. and is currently being treated in Exeter Hospital.

They are refusing to feed her via a nasogastric tube in such a way that takes into account her specific needs - and despite an M.E. specialist saying it's safe to do so - because it isn't in accordance with their hospital guidelines.

Alice needs help, so that she can be fed in a way that won't compromise her health, and potentially permanently worsen her symptoms.

Please sign and share this petition!

Petition · Save Alice Barrett's Life · Change.org

Edit: I paid to blaze this post, so it would reach as many people as possible, but sadly, the Tumblr moderators have rejected this, so this post is not sponsored as I intended - I don't know why. If Alice's family and friends see this post, please know that I tried! 🤷🏻‍♀️


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