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As a British person living with severe M.E., (plus fibromyalgia and some other issues), I would ask that you please sign and share this petition to get Royal Devon and Exeter NHS Foundation Trust to make accommodations for Alice Barrett, who has very severe M.E. and P.O.T.S. and is currently being treated in Exeter Hospital.
They are refusing to feed her via a nasogastric tube in such a way that takes into account her specific needs - and despite an M.E. specialist saying it's safe to do so - because it isn't in accordance with their hospital guidelines.
Alice needs help, so that she can be fed in a way that won't compromise her health, and potentially permanently worsen her symptoms.
Please sign and share this petition!
Petition · Save Alice Barrett's Life · Change.org
Edit: I paid to blaze this post, so it would reach as many people as possible, but sadly, the Tumblr moderators have rejected this, so this post is not sponsored as I intended - I don't know why. If Alice's family and friends see this post, please know that I tried! 🤷🏻♀️
Seeking advice: new wheelchair user
I will be using a wheelchair semi-regularly the next month to see if it will help reduce pain flare-ups / baseline pain and to figure out if it's helpful for me.
Tomorrow is the first day and I am going to uni and therapy. I have only used a wheelchair a couple of times but I'm comfortable with folding it and such as my dad's disabled and it's his wheelchair I'm borrowing. In theory I know how to maneuver around but I'm nervous about it.
Do any wheelchair-users have tips/advice for new wheelchair-users?
Extra info: it's a foldable wheelchair, brand is Quickie. I'm nervous about tipping backwards (no anti-tip), going up and down curbs, taking the metro, painful hands/arms/shoulders.
My chronic pain has gotten worse every winter for the past 4ish years. And not just a flare up that goes away again but permanently worse. And I don't know if it's simply a coincidence that it happens every winter but I'm so nervous and scared because it's getting cold again.